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BIO Technology Transfer Symposium: Funding that First $2 Million
With creative funding schemes picking up steam and nontraditional funders taking an interest in biotech, what can universities and start-ups expect in their right first-round financing structure? At...
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eAdvocacy Summit Brings Together More Than 130 Groups
BIO’s mission is to champion biotechnology issues by advocating for policies that will enable the realization of breakthrough products to cure disease, feed the hungry, and clean our environment. The...
View ArticleFDASIA: A Step Forward for Patients
Earlier this year, Congress passed and President Obama signed the FDA Safety and Innovation Act (FDASIA) which included a re-authorization of the Prescription Drug User Fee Act (PDUFA). PDUFA provides...
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Harder, Better, Faster, Stronger: Takeaways from Partnering For Cures 2012
The chorus to Kanye West’s 2007 chart-topper Stronger can teach us volumes about speeding drug development. Harder: Drug development is challenging. It takes over 10 years and more than $1 billon to...
View ArticleOnyx CEO One of 25 Most Influential People in Biopharm Today According to...
After a stellar year, as evidenced by inclusion in the second annual FierceBiotech “25 Most Influential People in Bipoharma Today,” N. Anthony (Tony) Coles, MD, Chairman & CEO of Onyx...
View ArticleMedicare Part B: Barriers to Cancer Treatment
The National Patient Advocate Foundation (PAF) has seen a notable rise in calls for assistance from both Medicare beneficiaries and cancer doctors regarding difficulty accessing certain cancer drugs in...
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Psoriasis Patients Flock to Social Media for Practical Info
About eight in 10 psoriasis patients who use health care social networks say they do so primarily to learn how others manage their disease, and get practical tips and advice they couldn’t find...
View ArticleRare Disease Day 2014: Joining Together for Better Care
There are more than 6,000 different rare diseases affecting over 60 million people across Europe and North America, alone, and millions more throughout the world. Most of these diseases are genetic,...
View ArticleThe International Myeloma Foundation Pioneers Myeloma Awareness Month
Years ago, after much frustration over the lack of understanding and awareness of multiple myeloma, the International Myeloma Foundation (IMF) declared March as “Myeloma Awareness Month” and has grown...
View ArticleIndustry-Disease Foundation Partnerships Thrive on Communication & Transparency
Disease foundations are playing an increasingly important role in advancing research and helping to bring new treatments to market. Their unique expertise in specific disease areas, along with their...
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Mito What???
Mitochondrial Disease: The Most Common Disease You’ve Probably Never Heard of… About 20 years ago, mitochondrial disease was virtually unheard of. Just 10 years ago, it was considered rare. Today,...
View ArticleWorld Rare Disease Day Celebrates Patient Advocacy and Activism Around The Globe
Global Genes™ and the identifiable Blue Denim Genes Ribbon™ provides opportunity to show support and help build awareness Global Genes, a leading patient advocacy organization with the mission to...
View ArticleIntegrating the Patient Voice: Recap of the 2016 BIO CEO & Investor Conference
The 2016 BIO CEO & Investor Conference isn’t just for biotech companies and the investment community, the conference featured a strong patient voice and focus on the patient perspective in drug...
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BIO Principles Put Patients First
Patient advocacy organizations play an indispensable role in the biopharmaceutical development process: They help scientists and researchers better understand what it’s like to live with the diseases...
View Article2016 BIO Patient and Health Advocacy Summit Comes to a Close
The fifth annual BIO Patient and Health Advocacy Summit concluded on November 4, bringing together over 300 attendees representing more than 200 organizations including patient advocacy and provider...
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2017 BIO Patient Advocacy Pavilion: Bringing Patient Centricity to the Forefront
The role of patient advocacy organizations in the life cycle of drug development has gone through a significant evolution. In addition to effectively enhancing awareness and communicating what is most...
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Opportunities for Patient and Health Advocates
Last week, the seventh annual Patient and Health Advocacy Summit brought hundreds of patient advocates, industry experts and policymakers together to engage on important issues facing the patient...
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Patient Groups/Industry Address Best Practices to Avoid Conflicts
At a recent panel discussion at BIO’s Patient and Health Advocacy Summit, representatives from biopharmaceutical companies and patient advocacy groups discussed the importance of working together to...
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It Starts with One (Rare) Patient
In 1983, patient advocates – now known as the National Organization for Rare Disease, NORD – ignited a movement and rallied support for the Orphan Drug Act to facilitate development of treatments for...
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